Bury/Bolton ME/CFS Support Group Useful Contacts

Below is a list of organisations and practitioners that you may find useful. The group does not endorse any of these treatments or organisations.

Please think carefully before you decide to undergo any treatment as people can have very different reactions-what may make one person feel better may make another person feel worse. Some of the alternative practitioners listed here have previously given talks to our group, there may be others in your area. This list can also be found in the newsletter.

ME/CFS Specialists

Name	Contact Number	Web/Email	What they do
Dr Tarek Gaber	NHS clinic: 01204 462 765		Lead clinician in ME/CFS services - Bolton and Bury
Dr Raymond Perrin	0161 773 0123	The Perrin Clinic	Oestopathic diagnosis of ME/CFS
Gail Sumner-Physiotherapist	Westhoughton Clinic: 01942 841088 Bolton Clinic: 01204 522 133 Mobile: 07976 915 314	Gail Sumner Physiotherapist	Physiotherapy, Perrin technique, ME/CFS specialist

Benefits

Name	Contact Number	Web/Email	What they do
Benefits and Work		Benefits and Work (their guides are available to our members)	Provides comprehensive information about Disability Living Allowance and Attendance Allowance
Blue badge info		Blue badge info	How to apply for a blue badge
Disability Living Allowance (dept for work and pensions)	0845 712 3456	Disability Living Allowance	Government site covering disability living allowance
Disability Team - Bolton Council	01204 337970	Disability Team - Bolton Council	Provides information on all aspects of disability
Disability Team - Bury Council	0161 253 6858	Disability Team - Bury Council	Provides information on how you can adapt your home to become more independent - Also provides advice on benefits
General government guidance on entitlements		Direct.gov.uk	Government advice for disabled people
Bolton Care and Repair Handyman Service		Bolton Care and Repair Service	£10 an hour handyman service for over 60s or those on DLA

Care

Name	Contact Number	Web/Email	What they do
Bury/Bolton ME/CFS Support Group-Equipment Hire			Members are welcome to borrow our manual wheelchair or one of two electric scooters (scooters are £2 per day to hire, to cover insurance costs).
Bury/Bolton ME/CFS Support Group-Library	01942 810320	Library List Email Carole	A comprehensive library with books and CDs to borrow
Bury/Bolton ME/CFS Support Group-Yoga	0770 803 66 36	Yoga information Email Lisa	Classes are 2:45pm-4:00pm on Tuesdays at The Sea Cadets, Castle St, Bolton.
Bolton Carers Support	01204 363 056	Bolton Carers Support	Bolton Carers Support is a registered charity for adults who have caring responsibilities and who live in Bolton or who care for someone who lives in Bolton
Bolton Community Transport and Furniture Services	01204 393 777	BCTFS	Has a fleet of 4 vehicles, to help disabled and elderly people
Bolton Council for Voluntary Services (CVS)	01204 546010	Bolton CVS	Also includes Bolton neuro voices
Bury Carers Centre	0161 763 4867/0161 834 6069	Bury Carers Centre	Provides support and advice to carers
DIAL-Disability Information and Advice Line	0808 800 33 33	DIAL	A national organisation for a network of approximately 120 local disability information and advice services run by and for disabled people
Disabled Living	0161 607 8200	Disabled Living	Provides products and training to improve disabled people's lives
Ring and Ride	0161 244 1504	Ring and Ride	Ring & Ride provides a door-to-door, accessible minibus service for people of all ages who find it very difficult to use ordinary public transport. You must register before you are able to book journeys.
Shopmobility Bolton	01204 392946	Shopmobility Bolton	Provides scooters and wheelchairs on loan for residents and visitors in Bolton
Shopmobility Bury	0161 764 9966	Shopmobility Bury	Provides scooters and wheelchairs on loan for residents and visitors in Bury
Shopmobility Manchester	0161 839 4060	Shopmobility Manchester	Provides scooters and wheelchairs on loan for residents and visitors in Manchester

Legal and Advice

Name	Contact Number	Web/Email	What they do
Bolton Citizen's Advice Bureau	0844 826 9707	Bolton Citizen's Advice Bureau	Provides independent advice on a wide range of topics, including benefits, housing, employment and debt, consumer and legal issues.
Bury Citizen's Advice Bureau	0845 1203757	Bury Citizen's Advice Bureau	Provides independent advice on a wide range of topics, including benefits, housing, employment and debt, consumer and legal issues
Community Legal Advice	0845 3454345	Community Legal Advice	Offers free, confidential and independent legal advice for residents of England and Wales
Greater Manchester Coalition of Disabled People (GMCDP)	0161 276 0045	GMCDP	Their Information & Advocacy Unit specialises in issues such as housing, benefits, rights, transport, and leisure activities.
The Equality and Human Rights Commission	0845 604 6610	The Equality and Human Rights Commission	"Promotes and monitors human rights - protects, enforces and promotes equality across age, disability, gender, race, religion and belief, sexual orientation and gender reassignment
Weightmans	0161- 233-7330	Weightmans	They cover a range of legal subjects, although one of our members successfully used them for an employment claim

ME/CFS Organisations/Charities

Name	Contact Number	Web/Email	What they do
25% ME Group	01292 318611	25% ME Group	For severe ME/CFS sufferers
Action for ME	0845 123 2380	Action for ME	Charity devoted to improving the lives of people with CFS/ME
Association of Young People with ME/	08451 23 23 89	AYME	Charity for younger CFS/ME sufferers
BASIC Neurocare Centre - Salford only	0161 707 6441	Basic	The Brain and Spinal Injury Centre - specialist resource for people and their families following a traumatic brain injury or neurological diagnosis
Bury/Bolton ME/CFS Support Group		Bury/Bolton ME/CFS Support Group	ME/CFS Support Group
Bury Neuro Support	0161 743 3701/02/03	GMNA	Greater Manchester Neurological Alliance - support group for any one with a neurological condition ( includes carers) - provides support and advice and social.
Disability Alliance	020 7247 8776	Disability Alliance	Works to relieve the poverty and improve the living standards of disabled people
East Lancs ME/CFS Support Group		East Lancs ME/CFS Support Group	ME/CFS support group
Forward ME		Forward ME	A forum of different UK CFS/ME charities. The aim is to coordinate efforts in this area.
Hull & East Yorkshire ME/CFS Support Group	01482 679005	Hull & East Yorkshire ME/CFS Support Group	ME/CFS support group
Leeds ME/CFS Support Group		Leeds ME/CFS Support Group	ME/CFS support group
Leigh ME/CFS Support Group	Meets at The Courtyard Café Bistro, Stone Cross Lane, Lowton, WA3 2SA. cfsmesupport@hotmail.co.uk	Meets every other Wed 11.30am-1.30pm in alternate weeks to Wigan's meetings. Leigh ME/CFS Support Group	ME/CFS support group
Action 4 ME	0845 123 2380	A4ME	Action for ME's programme for young sufferers
ME Action UK		ME Action UK	Information and support for people with ME
ME Association	01280 818960	ME Association	Information and support for people with ME
MERGE	01738 451234	MERGE	ME Research UK
Morecambe Bay ME Group	015395 60729	Morecambe Bay ME Group	ME/CFS support group
National ME Centre	01708 378050	National ME Centre	A treatment centre based in Romford, Essex. Staff include ME/CFS experts Dr Betty Dowsett and Prof Leslie Findley
Greater Manchester Neurological Alliance	0161 743 3701/02/03	GMNA	Greater Manchester Neurological Alliance - support group for any one with a neurological condition ( includes carers) - provides support and advice and social.
PRIME		PRIME	The PRIME Project was a collaboration between patients, carers, researchers and service providers who wanted to improve our understanding of ME/CFS (PRIME also includes patient data from an earlier project, called CHROME, set up in 1994)
reMEmber	01273 831733	reMEmber	ME/CFS support group
Sheffield ME Group	0114 253 6700	Sheffield ME Group	ME/CFS support group
Stockport ME Group	0845 519 4116	Stockport ME Group	ME/CFS support group
The Young ME Suffers Trust	0845 003 9002	TYMES Trust	Support group for young sufferers
Wigan ME Support Group	Meet at the Café Bistro, The Belong Centre, Platt Bridge.	Meeting are every other Monday 11am-1pm.Run on alternate weeks to Leigh.	ME/CFS support group
Worcestershire ME Support Group	01905 455187	Worcestershire ME Support Group	ME/CFS support group

NHS Health Providers

Name	Contact Number	Web/Email	What they do
Bolton and Bury ME/CFS Clinics	01204 462 765		Ask your GP for a referral to: ME/CFS Clinic,Breightmet Health Centre, Breightmet Fold Lane, Breightmet Bolton, BL2 6NT. The appointments are at Breightmet Health Centre if in Bolton or the Prestwich Walk-In Centre if you live in Bury.
Bury Primary Care Trust	0161 705 3108	Bury PCT	Receives the NHS budget for Bury - plans and delivers health services to meet the needs of local people
East Manchester ME/CFS Service	0161 426 5481		Specialist ME/CFS multidisciplinary team - Referral is via your GP
Greater Manchester Clinical Network Co-ordinating Centre	0161 219 9420	Greater Manchester Clinical Network Co-ordinating Centre	The body that coordinates the provision of ME/CFS services in and around Greater Manchester
NICE Guidelines for ME/CFS		NICE Guidelines	How ME/CFS should be treated on the NHS
North Manchester General Hospital - Department of Chronic Fatigue	0161 720 2598	North Manchester General Hospital - Department of Chronic Fatigue	Specialist ME/CFS multidisciplinary team
Pennine Rheumatology Centre	0161 762 3099, or email Joanne at PALS	Pennine Rheumatology Centre Information	Rheumatology Centre in Rochdale
Specialist Service for Severe CFS/ME	0161 219 9420		Specialist ME/CFS multidisciplinary team - Referral is via your GP
St Cyril's Rehabilitation Unit	01925 423347	St Cyril's Rehabilitation Unit	Patients with severe ME can now be referred for in patient treatment and rehabilitation at St Cyril’s Rehabilitation Unit, Countess of Chester Hospital, Liverpool Road, Chester. The cost is usually paid for by the NHS.
The Ashton Leigh and Wigan ME/CFS Service	0161 701 4516	The Ashton Leigh and Wigan CFS/ME Service	Specialist ME/CFS multidisciplinary team - Referral is via your GP
The Salford Chronic Fatigue service	0161 206 7049/ 206 5153		Specialist ME/CFS multidisciplinary team - Referral is via your GP

Private Health Providers

Name	Contact Number	Web/Email	What they do
Breathworks	0161 834 1110	Breathworks	Offers training in mindfulness based approaches to pain and illness
The Alexander Technique	0161 947 9184	Charles Tully	The Alexander Tecnique

Work

Name	Contact Number	Web/Email	What they do
Access to Work-NW England	0141 950 5327	Access to Work	Access to Work can help you if your health or disability affects the way you do your job. It gives you and your employer advice and support with extra costs which may arise because of your needs.
Job Centre Plus	0800 055 6688	Job Centre Plus	Provides services that support people of working age from welfare into work