Below is a list of organisations and practitioners that you may find useful. The group does not endorse any of these treatments or organisations.

Please think carefully before you decide to undergo any treatment as people can have very different reactions-what may make one person feel better may make another person feel worse. Some of the alternative practitioners listed here have previously given talks to our group, there may be others in your area. This list can also be found in the newsletter.

ME/CFS Specialists

Name Contact Number Web/Email What they do
Dr Tarek Gaber NHS clinic: 01204 462 765   Lead clinician in ME/CFS services - Bolton and Bury
Dr Raymond Perrin 0161 773 0123 The Perrin Clinic Oestopathic diagnosis of ME/CFS
Gail Sumner-Physiotherapist Westhoughton Clinic: 01942 841088
Bolton Clinic: 01204 522 133
Mobile:
07976 915 314
Gail Sumner Physiotherapist Physiotherapy, Perrin technique, ME/CFS specialist


Benefits

Name Contact Number Web/Email What they do
Benefits and Work   Benefits and Work (their guides are available to our members) Provides comprehensive information about Disability Living Allowance and Attendance Allowance
Blue badge info   Blue badge info How to apply for a blue badge
Disability Living Allowance (dept for work and pensions) 0845 712 3456 Disability Living Allowance Government site covering disability living allowance
Disability Team - Bolton Council 01204 337970 Disability Team - Bolton Council Provides information on all aspects of disability
Disability Team - Bury Council 0161 253 6858 Disability Team - Bury Council Provides information on how you can adapt your home to become more independent - Also provides advice on benefits
General government guidance on entitlements   Direct.gov.uk Government advice for disabled people
Bolton Care and Repair Handyman Service   Bolton Care and Repair Service £10 an hour handyman service for over 60s or those on DLA


Care

Name Contact Number Web/Email What they do
Bury/Bolton ME/CFS Support Group-Equipment Hire Members are welcome to borrow our manual wheelchair or one of two electric scooters (scooters are £2 per day to hire, to cover insurance costs).
Bury/Bolton ME/CFS Support Group-Library 01942 810320 Library List
Email Carole
A comprehensive library with books and CDs to borrow
Bury/Bolton ME/CFS Support Group-Yoga 01706 829488 Yoga information
Email Olivia
Classes are 2:45pm-4:00pm on Tuesdays at the Jubilee Centre, Darley Street (off Eskrick St), Bolton, BL1 3DX
Bolton Carers Support 01204 363 056 Bolton Carers Support Bolton Carers Support is a registered charity for adults who have caring responsibilities and who live in Bolton or who care for someone who lives in Bolton
Bolton Community Transport and Furniture Services 01204 393 777 BCTFS Has a fleet of 4 vehicles, to help disabled and elderly people
Bolton Council for Voluntary Services (CVS) 01204 546010 Bolton CVS Also includes Bolton neuro voices
Bury Carers Centre 0161 763 4867 Bury Carers Centre Provides support and advice to carers
DIAL-Disability Information and Advice Line 0161 839 0421 DIAL A national organisation for a network of approximately 120 local disability information and advice services run by and for disabled people
Disabled Living 0161 607 8200 Disabled Living Provides products and training to improve disabled people's lives
Ring and Ride 0161 244 1504 Ring and Ride Ring & Ride provides a door-to-door, accessible minibus service for people of all ages who find it very difficult to use ordinary public transport. You must register before you are able to book journeys.
Shopmobility Bolton 01204 392946 Shopmobility Bolton Provides scooters and wheelchairs on loan for residents and visitors in Bolton
Shopmobility Bury 0161 764 9966 Shopmobility Bury Provides scooters and wheelchairs on loan for residents and visitors in Bury
Shopmobility Manchester 0161 839 4060 Shopmobility Manchester Provides scooters and wheelchairs on loan for residents and visitors in Manchester


Legal and Advice

Name Contact Number Web/Email What they do
Bolton Citizen's Advice Bureau 0844 826 9707 Bolton Citizen's Advice Bureau
Provides independent advice on a wide range of topics, including benefits, housing, employment and debt, consumer and legal issues.
Bury Citizen's Advice Bureau 0845 1203757 Bury Citizen's Advice Bureau Provides independent advice on a wide range of topics, including benefits, housing, employment and debt, consumer and legal issues
Community Legal Advice 0845 3454345 Community Legal Advice Offers free, confidential and independent legal advice for residents of England and Wales
Greater Manchester Coalition of Disabled People (GMCDP) 0161 276 0045 GMCDP Their Information & Advocacy Unit specialises in issues such as housing, benefits, rights, transport, and leisure activities.
The Equality and Human Rights Commission 0845 604 6610 The Equality and Human Rights Commission "Promotes and monitors human rights - protects, enforces and promotes equality across age, disability, gender, race, religion and belief, sexual orientation and gender reassignment
Weightmans 0161- 233-7330 Weightmans They cover a range of legal subjects, although one of our members successfully used them for an employment claim




ME/CFS Organisations/Charities

Name Contact Number Web/Email What they do
25% ME Group 01292 318611 25% ME Group For severe ME/CFS sufferers
Action for ME 0845 123 2380 Action for ME Charity devoted to improving the lives of people with CFS/ME
Association of Young People with ME/ 08451 23 23 89 AYME Charity for younger CFS/ME sufferers
BASIC Neurocare Centre - Salford only 0161 707 6441 Basic The Brain and Spinal Injury Centre - specialist resource for people and their families following a traumatic brain injury or neurological diagnosis
Bury/Bolton ME/CFS Support Group Bury/Bolton ME/CFS Support Group ME/CFS Support Group
Bury Neuro Support 0161 743 3701/02/03 GMNA Greater Manchester Neurological Alliance - support group for any one with a neurological condition ( includes carers) - provides support and advice and social.
Disability Alliance 020 7247 8776 Disability Alliance Works to relieve the poverty and improve the living standards of disabled people
East Lancs ME/CFS Support Group   East Lancs ME/CFS Support Group ME/CFS support group
Forward ME   Forward ME A forum of different UK CFS/ME charities. The aim is to coordinate efforts in this area.
Hull & East Yorkshire ME/CFS Support Group 01482 679005 Hull & East Yorkshire ME/CFS Support Group ME/CFS support group
Leeds ME/CFS Support Group   Leeds ME/CFS Support Group ME/CFS support group
Leigh ME/CFS Support Group Meets at The Courtyard Café Bistro, Stone Cross Lane, Lowton, WA3 2SA. cfsmesupport@hotmail.co.uk Meets every other Wed 11.30am-1.30pm in alternate weeks to Wigan's meetings. Leigh ME/CFS Support Group ME/CFS support group
Action 4 ME 0845 123 2380 A4ME Action for ME's programme for young sufferers
ME Action UK   ME Action UK Information and support for people with ME
ME Association 01280 818960 ME Association Information and support for people with ME
MERGE 01738 451234 MERGE ME Research UK
Morecambe Bay ME Group 015395 60729 Morecambe Bay ME Group ME/CFS support group
National ME Centre 01708 378050 National ME Centre A treatment centre based in Romford, Essex. Staff include ME/CFS experts Dr Betty Dowsett and Prof Leslie Findley
Greater Manchester Neurological Alliance 0161 743 3701/02/03 GMNA Greater Manchester Neurological Alliance - support group for any one with a neurological condition ( includes carers) - provides support and advice and social.
PRIME   PRIME The PRIME Project was a collaboration between patients, carers, researchers and service providers who wanted to improve our understanding of ME/CFS (PRIME also includes patient data from an earlier project, called CHROME, set up in 1994)
reMEmber 01273 831733 reMEmber ME/CFS support group
Sheffield ME Group 0114 253 6700 Sheffield ME Group ME/CFS support group
Stockport ME Group 0845 519 4116 Stockport ME Group ME/CFS support group
The Young ME Suffers Trust 0845 003 9002 TYMES Trust Support group for young sufferers
Wigan ME Support Group Meet at the Café Bistro, The Belong Centre, Platt Bridge. Meeting are every other Monday 11am-1pm.Run on alternate weeks to Leigh. ME/CFS support group
Worcestershire ME Support Group 01905 455187 Worcestershire ME Support Group ME/CFS support group




NHS Health Providers

Name Contact Number Web/Email What they do
Bolton and Bury ME/CFS Clinics 01204 462 765 Ask your GP for a referral to: ME/CFS Clinic,Breightmet Health Centre, Breightmet Fold Lane, Breightmet Bolton, BL2 6NT. The appointments are at Breightmet Health Centre if in Bolton or the Prestwich Walk-In Centre if you live in Bury.
Bury Primary Care Trust 0161 705 3108 Bury PCT Receives the NHS budget for Bury - plans and delivers health services to meet the needs of local people
East Manchester ME/CFS Service 0161 426 5481   Specialist ME/CFS multidisciplinary team - Referral is via your GP
Greater Manchester Clinical Network Co-ordinating Centre 0161 219 9420 Greater Manchester Clinical Network Co-ordinating Centre The body that coordinates the provision of ME/CFS services in and around Greater Manchester
Manchester CFS/ME Service for Children and Young People 0161 701 4516 cfs.me@cmft.nhs.uk Specialist ME/CFS multidisciplinary team - Referral is via your GP
NICE Guidelines for ME/CFS   NICE Guidelines How ME/CFS should be treated on the NHS
North Manchester General Hospital - Department of Chronic Fatigue 0161 720 2598 North Manchester General Hospital - Department of Chronic Fatigue Specialist ME/CFS multidisciplinary team
Pennine Rheumatology Centre 0161 762 3099, or email Joanne at PALS Pennine Rheumatology Centre Information Rheumatology Centre in Rochdale
Specialist Service for Severe CFS/ME 0161 219 9420   Specialist ME/CFS multidisciplinary team - Referral is via your GP
St Cyril's Rehabilitation Unit 01925 423347 St Cyril's Rehabilitation Unit Patients with severe ME can now be referred for in patient treatment and rehabilitation at St Cyril’s Rehabilitation Unit, Countess of Chester Hospital, Liverpool Road, Chester. The cost is usually paid for by the NHS.
The Ashton Leigh and Wigan ME/CFS Service 0161 701 4516 The Ashton Leigh and Wigan CFS/ME Service Specialist ME/CFS multidisciplinary team - Referral is via your GP
The Salford Chronic Fatigue service 0161 206 7049/ 206 5153   Specialist ME/CFS multidisciplinary team - Referral is via your GP


Nutrition

Name Contact Number Web/Email What they do
Dietary Needs Direct 01453 790 999 Dietary Needs Direct Sells a wide range of products for food intolerances,special diets and natural health care
Goodness Direct 0871 871 6611 Goodness Direct Sells a large range of gluten/wheat/dairy/egg free, organic, fresh, healthy, eco-friendly food. Also sells toiletries, books, household products, etc.
iHerbs iHerb Supplier of vitamins and supplements in the USA - prices can be much lower than in the UK




Private Health Providers

Name Contact Number Web/Email What they do
Breathworks 0161 834 1110 Breathworks Offers training in mindfulness based approaches to pain and illness
The Alexander Technique 0161 947 9184 Charles Tully The Alexander Tecnique


Work

Name Contact Number Web/Email What they do
Access to Work-NW England 0141 950 5327 Access to Work Access to Work can help you if your health or disability affects the way you do your job. It gives you and your employer advice and support with extra costs which may arise because of your needs.
Job Centre Plus 0800 055 6688 Job Centre Plus Provides services that support people of working age from welfare into work