Click here for info on the Manchester 11-16 year olds group
MANCHESTER ME/CFS SERVICE FOR CHILDREN AND YOUNG PEOPLEThe Manchester ME/CFS Service for Children and Young People is located at Royal Manchester Children’s Hospital.
Children with M.E in Greater Manchester can get referred to this clinic. However, despite M.E being classed as a neurological illness by the World Health Organisation and the Chief Medical Officer declaring it a real illness, the clinic is under the Mental Health department. As such, treatments are not appropriate for those with M.E, and we have not heard any good reports from patients who have attended this clinic.
OUT OF AREA PAEDIATRICIAN
There is a paediatrician who takes referral from out of area. The PCT can buy in her services if they have no existing children's service.
Dr Esther Crawley
Specialist ME/CFS Services for Children and Adolescents
Royal National Hospital for Rheumatoid Disease
Upper Borough Walls
Bath BA1 1RL
01225 473 425
A NEW YOUNG PERSONS GROUP FOR 11-16 YEAR OLDS
One of our members Rosie Heaton has set up a group for young people with ME, aged 11-16 who live in and around Manchester. Rosie Heaton says she has set up this group "FOR people with m.e but not BASED around m.e! The aim of this group is to create friendships and break the isolation while making teenage life with m.e more normal :) Hopefully once I've bumped up the numbers, we will have monthly meetups- going for a pizza, to the cinema, bowling or any other suggestions!"
For more information on the young persons group, email email@example.com or phone 07982 403 048.
She has also set up a group on Facebook
The following websites are also helpful and contain lots of information:
TYMES (The Young ME Sufferer) GO TO WEBSITE
AYME (Association for Young people with ME) Tel: 08451 23 23 89 GO TO WEBSITE
ME ACTION UK 4 CHILDREN & YOUNG PEOPLE: GO TO WEBSITE
Bolton Info for Families with Disabled Children PDF: click here
Bury Council: Children with Disabilities click here
"Living with ME from a young person's perspective and coping strategies" from April 2006 forum
Low energy activites to try