The Bury/Bolton ME/CFS Support Group is aimed at supporting ME/CFS sufferers and their carers. There are an estimated 680 sufferers in Bolton and
460 in Bury, according to Action for ME national figures.
If you wish to become a member of the group, please print off this form (PDF file), or this form (Word doc) with your donation and send to the address/email at the bottom. Membership is £8 per year.
Our volunteer named Woman of the Year 2013!: Our carers' representative and group co-founder, Yvonne Leech, was named Woman of the Year 2013 at the Fusion Awards! Yvonne has worked for the recognition of ME for 30 years and made sure the views of carers' are taken into consideration. Congratulations Yvonne, we are very proud of you!
See the Bury Times article here and watch her interview here.
Our main meetings are held at: Longsight Methodist Church, Longsight, Harwood, Bolton, BL2 3HZ on the third Thursday of every month at 7:30pm, except April, August and December (Prestwich and Radcliffe socials on all year round).
Our main meetings are held at Longsight Methodist Church, Harwood, Bolton, BL2 3HZ, on the third Thursday of every month at 7:30pm, except in April, August and December.
They either have a speaker who talks to us about various topics, e.g. nutrition, equipment to help around the home, reflexology, etc. After the talk, there is usually time for members to chat.
Other times, we have social evenings which have no speaker and are an opportunity for members to chat over tea, coffee and biscuits.
Entrance is £1 and refreshments provided(inc gluten/dairy free, etc). Carers are free. Carers, friends, and family are more than welcome to join us.
Next Longsight, Harwood meetings:
No meeting in August
Thursday 18th September 7:30pm- E.G.M & Book-Swap Social
We need to call an Extraordinary General Meeting, which should take no more than 5-10 minutes (simply a show of hands to vote in our new group documents).
After that boring stuff, we can have a Book-Swap Social, which was very popular last time. Just bring any books or magazines you no longer want, to donate,
and you can buy some new books for 50p each, magazines for 10p each, raising some funds for the group.
Please bring a maximum of 6 books, that you think other members would enjoy.
Thursday 16th October- Oliver, DWP Relations Officer, will be coming to talk to us about Personal Independence Allowance (PIP), formerly Disability Living Allowance, and about the changes surrounding it. If you have any questions, please send them to us in advance. He was recommended to us by another support group, who said he was very nice and informative.
The meetings last about a hour to one and a half hours.
At the meetings,
Carole who runs the library, holds a stall with all the available books to borrow. Click here for more details and a complete list of books we have.
We meet in the Methodist Church, the large stone building (not the smaller church hall opposite which we used to meet in). We can still use the same car park behind the church hall, opposite. There are also double yellow lines outside the front of the church, and to the side, so you can park on there if you show a valid blue badge and time disc. There is a long wheelchair ramp up the front entrance. There is normal parking on the road further down Longsight (the main road) and Longsight Lane (the side road).
The Church's address is Longsight Church, Longsight, Harwood, BL2 3HZ. The Church does not have a number itself, but is next to house number 120 Longsight, so the best Sat Nav instructions to use are 120 Longsight, BL2 3HX. Longsight Church is a large stone building on the main road. It is on the 507 bus route.
Please come and join us for our meetings, you are welcome to bring a friend, relative, etc.
Carers and friends are more than welcome at any of our meetings!
The church has a well-sized car park and the ramps at the entrance provide good wheelchair access.
The Harwood meetings are either a social, or have a guest speaker. Speakers talk to us about various topics, e.g. nutrition, equipment to help around the home, reflexology, etc. After the talk, there is usually time for members to chat.
The social evenings have no speaker and are an opportunity for members to chat over tea, coffee and biscuits. Tables will be placed around the room for groups of around 5 or 6. Please help us at the end, by putting away your own chair if you are able. Carers are more than welcome to join us.
The entrance fee is £1 (to pay to rent the church for the evening)and carers are free. Refreshments are provided, with gluten/dairy free, etc catered for as well.
Please see the "Future Meetings" page for directions.
Prestwich Socials:*THESE HAVE MOVED TO THE CHURCH INN, PRESTWICH!* Now the Radcliffe socials will be starting again, we will see how attendance at Prestwich continues. Please note change of venue to The Church Inn, 40 Church Lane, Prestwich, M25 1AJ. This has level access and free parking outside.
***Unfortunately, due to poor attendance, our Prestwich socials are in danger of being cancelled. We understand people may be unwell, or have other things on that day, but they were set up in response to demand and if numbers do not improve, we may have to stop these and just have our Harwood and Radcliffe meetings.
Please check on Facebook first to check it is still going ahead, as that's the quickest and easiest way, or call Maria on 07867862341 if you are not on Facebook. We are sorry to have to do it this way, apologies those not online, but it is either this or stop them altogether.
The next Prestwich social is 13th August, 2pm.
Don't forget, we also meet in Harwood and Radcliffe!
Radcliffe Socials: Our Radcliffe Social Group meets informally on the first Wednesday of each month,
at 2pm, at Bradley Fold Garden Centre, Moor Rd, Radcliffe, BL2 6RE. Use the exit doors to save a longer walk! Look out for our newsletter on the table.
Our next Radcliffe social will be on the first Wednesday of the month Wednesday 6th August at 2pm. We will put our newsletter on the table, so you can recognise us. The address is Moor Road, Radcliffe, Bury, M26 3WY.
Yoga Classes: Are 3:15pm-4:15pm on Tuesdays at the Jubilee Centre, Darley Street (off Eskrick St), Bolton, BL1 3DX. Designed to cater for the average ME sufferer, classes are free and yoga mats are provided.
Please wear loose, comfortable clothing. For further information you can contact our instructor, Julia Silver-Wren, who can be contacted on 01204 394 768 or firstname.lastname@example.org. Classes are free due to funding provided by Comic Relief
Bury/Bolton ME/CFS Service:
Please see our "M.E Clinic News" page for more details on the service.
New patients need to be referred to the Service by their G.P and have blood work send with the referral.
Existing patients, if they are encountering problems, may self refer back to the service by phoning the Clinic, for up to 12 months after their course of therapy has been completed. After that time they may be re-referred by contacting their G.P. This applies to both Bolton and Bury patients. At present all patients are seen at the Bolton Breightmet Clinic, except for extremely severe cases, where home visits may be arranged.
If you ask your doctor to refer you to the Bury or Bolton ME/CFS Clinics, please ask for a referral to:
Breightmet Health Centre
Breightmet Fold Lane
Telephone: 01204 462 765
30 Volunteers required to be chaperones for a new NHS research project at Wrightington Hospital, Wigan starting in July.
Examining the accuracy of a physical diagnostic technique For Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Aim: The aim of this study is to explore if there is validity in the use of specific physical signs as an aid to diagnosing CFS/ME
Recruitment : 100 participants, 50 CFS/ME sufferers and 50 healthy controls, will take part in the study, which will consist of CFS/ME patients and participants who do not have CFS/ME as controls who have seen the advert for the research and have voluntarily contacted the research assistant.
Health professionals involved the study: Two practitioners will separately carry out the examination of the participant using the Perrin Technique.. The third practitioner involved in examining the participant will be a physician who will not have had any experience regarding the physical aspects of the Perrin technique.
Examination of Participants: The participant will see all three practitioners on the same day at Wrightington Hospital. This will take place no later than 1 month after consenting to the study.
The examination of the participant by both the physiotherapist and osteopath will follow the same format based on the physical signs being tested
The NHS physician will examine the participant using a standard clinical neurological and rheumatological examinations.As with the other two practitioners, no clinical history will be taken and the physician will only perform neurological and musculoskeletal screening tests on the upper and lower extremity.
The Role of The Chaperone: A chaperone will be present while the physical examination is carried out primarily to listen, observe and verify what is discussed and carried out. They must ensure that no conversation is carried out between the practitioner and participant with the exception of asking if there is any pain or tenderness on palpation of certain regions. The chaperone will also be there to safeguard both the practitioner and participant to identify any unusual or unprofessional behaviour. They will also witness the diagnosis and conclusion of the practitioner and validate the documentation by signature.
For the success of this project we need chaperones to volunteer for five hours on at least one Sunday from July 2014 to June 2015. We need three chaperones per day and there will be 10 Sundays during the research project that we will be seeing participants in Wrightington. So we need 30 volunteers in total (NB if you want to do more than one day…Great!) Please contact Dr Perrin at email@example.com if you want further details and are interested in volunteering.
Interested in becoming a member? Please visit the "Join Us" page for an application form.
meetings are held on the third Thursday of each month from 7.30pm until
9pm-ish, except in April, August and December. The March meeting is our AGM and November is our bring and share buffet social.
These meetings are held at:
Longsight Methodist Church, Longsight Lane, Harwood, Bolton, BL2 3HX.
The church has a well-sized car park and a ramp at the entrance
provide good wheelchair access. The entrance fee is £1 (to pay to rent
the church for the evening) and refreshments are provided (gluten/dairy free catered for).
Carers and friends also welcome! Please try to avoid wearing strongly scented toiletries when you
attend the meetings, as some members are very sensitive to these products.
Members are welcome to borrow our electric scooters or manual wheelchair (see "Contact Us" page).
The monthly newsletter (currently funded by Festival Medical Services is put together by members of the group and proves a great read!
It includes summaries of talks given to the group, future meeting dates, recent press articles,findings from the latest ME/CFS studies,
book reviews,helpful hints for ME/CFS sufferers/carers and more. Contact information for other ME/CFS groups (as seen on our "Helpful Contacts" page) is given on the back page.
You can see previous articles on the "Newsletter Articles" page.