The Bury/Bolton ME/CFS Support Group is aimed at supporting ME/CFS sufferers and their carers. There are an estimated 680 sufferers in Bolton and 460 in Bury, according to Action for ME national figures.  

If you wish to become a member of the group, please print off this form (PDF file), or this form (Word doc) with your donation and send to the address/email at the bottom. Membership is £8 per year.

NICE Guidelines and Understanding the NICE Guidelines
What You Need To Know About My Condition Info Sheet (for hospital stays, respite, etc)
What You Need To Know About My Condition Info Sheet (PDF version)
Library list JULY 2014 Update & FAQ's

Our volunteer named Woman of the Year 2013!
: Our carers' representative and group co-founder, Yvonne Leech, was named Woman of the Year 2013 at the Fusion Awards! Yvonne has worked for the recognition of ME for 30 years. See the Bury Times article here and watch her interview here.

Please note, there is no hydrotherapy on Friday 7th November, it is now cancelled permanently due to lack of numbers.

MAIN MEETINGS:

Wildlife Trust Centre Building, Bury Rd, Bolton, BL2 6DH
on the third Thursday of every month at 7:30pm, except in April, August and December.


The entrance fee is £1 and carers are free. There is a small car park for about 15 cars, and blue badge holders can park on the main road if the badge is displayed correctly. We meet on the second floor. There is a lift which must be operated by hand, and cannot find the bigger scooters in, but can accommodate small/average size scooters. There will be a Wildlife Trust staff member and group members on hand if you need assistance. Please see here for further details on access. Refreshments are provided, with gluten/dairy free, etc catered for as well.

They either have a speaker who talks to us about various topics, e.g. nutrition, equipment to help around the home, reflexology, etc. After the talk, there is usually time for members to chat. Other times, we have social evenings which have no speaker and are an opportunity for members to chat, sometimes with a bring and share buffet, or a book swap.


Carers, friends and family are more than welcome to join us. We understand you may be nervous or shy, but we are a friendly and supportive bunch. If it's your first time visiting us, please tell the person on the door, who will find a committee member to show you around.

Next main meeting at the Wildlife Trust Centre, Bury Rd:

Thursday 20th November- Pre-Xmas Bring and Share Supper Social
, please bring an item of sweet or savoury food to share and enjoy for our buffet. Gluten/dairy free are usually very well catered for and we always go home with leftovers.

No meeting in December


The meetings last about a hour to one and a half hours.

At the meetings, Carole who runs the library, holds a stall with all the available books to borrow. Click here for more details and a complete list of books we have.

We also have a small stall selling ME & FM awareness items, as well as postive disability awareness items from Stickman Communications. View and get directions on Google Maps

Our main meetings are either a social, or have a guest speaker. Speakers talk to us about various topics, e.g. nutrition, equipment to help around the home, reflexology, etc. After the talk, there is usually time for members to chat.

The social evenings have no speaker and are an opportunity for members to chat over tea, coffee and biscuits. Tables will be placed around the room for groups of around 5 or 6. Please help us at the end, by putting away your own chair if you are able. Carers are more than welcome to join us. The entrance fee is £1 (to pay for refreshments, etc) and carers are free. Refreshments are provided, with gluten/dairy free, etc catered for as well.

PRESTWICH SOCIALS:

The Church Inn, 40 Church Lane, Prestwich, M25 1AJ
on the second Wednesday of the month at 2pm


Unfortunately, due to poor attendance, our Prestwich socials are in danger of being cancelled.

Please check on Facebook first to check it is still going ahead, as that's the quickest and easiest way, or call Maria on 07867862341 if you are not on Facebook. We are sorry to have to do it this way, apologies those not online, but it is either this or stop them altogether. The next Prestwich social is Wednesday 8th October, 2pm and Wednesday 12th November. This has level access and free parking outside. This has level access and free parking outside, comfy seats and is relatively quiet.

BOLTON SOCIALS:

PizzaMe, Breightmet Fold Lane, BL2 6PP
on the first Wednesday of the month at 2pm


Our Bolton Social Group meets informally on the first Wednesday of each month, at 2pm, at PizzaMe, Breightmet Fold Lane, BL2 6PP, (just next to Breightmet health centre-accross from Morrisons& Home Bargains).

The next one will be 1st October at 2pm and Wednesday 5th November. See Pizza Me (www.wannapizzame.com).
Pizza Me has ample parking, with a very short distance to walk to the front door, where there is level access with no steps. The toilets are located to the left of the door as you go in, or there is a disabled toilet in the entrance way.

Although this is a restaurant, they are happy for us just to have drinks, but there is a range of food available for anyone who is hungry, including small snacks. We will be sat to the right of the bar (in the comfier seating) and will put a newsletter on the table so that you can recognise us.




Yoga Classes: Are 3:15pm-4:15pm on Tuesdays at the Jubilee Centre, Darley Street (off Eskrick St), Bolton, BL1 3DX. Designed to cater for the average ME sufferer, classes are free and yoga mats are provided. Please wear loose, comfortable clothing. For further information you can contact our instructor, Julia Silver-Wren, who can be contacted on 01204 394 768 or juliasilverwren@talktalk.net.
Classes are free due to funding provided by Comic Relief and the Co-Operative Membership Fund.

Bury/Bolton ME/CFS Service:

Please see our "M.E Clinic News" page for more details on the service. New patients need to be referred to the Service by their G.P and have blood work send with the referral.

Existing patients, if they are encountering problems, may self refer back to the service by phoning the Clinic, for up to 12 months after their course of therapy has been completed. After that time they may be re-referred by contacting their G.P. This applies to both Bolton and Bury patients. At present all patients are seen at the Bolton Breightmet Clinic, except for extremely severe cases, where home visits may be arranged.

If you ask your doctor to refer you to the Bury or Bolton ME/CFS Clinics, please ask for a referral to:

CFS/ME Clinic
Breightmet Health Centre
Breightmet Fold Lane
Breightmet
Bolton
BL2 6NT

Telephone: 01204 462 765

30 Volunteers required to be chaperones for a new NHS research project at Wrightington Hospital, Wigan starting in late 2014.

Examining the accuracy of a physical diagnostic technique For Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
Aim: The aim of this study is to explore if there is validity in the use of specific physical signs as an aid to diagnosing CFS/ME

Recruitment : 100 participants, 50 CFS/ME sufferers and 50 healthy controls, will take part in the study, which will consist of CFS/ME patients and participants who do not have CFS/ME as controls who have seen the advert for the research and have voluntarily contacted the research assistant.
Health professionals involved the study: Two practitioners will separately carry out the examination of the participant using the Perrin Technique.. The third practitioner involved in examining the participant will be a physician who will not have had any experience regarding the physical aspects of the Perrin technique.

Examination of Participants: The participant will see all three practitioners on the same day at Wrightington Hospital. This will take place no later than 1 month after consenting to the study. The examination of the participant by both the physiotherapist and osteopath will follow the same format based on the physical signs being tested The NHS physician will examine the participant using a standard clinical neurological and rheumatological examinations.As with the other two practitioners, no clinical history will be taken and the physician will only perform neurological and musculoskeletal screening tests on the upper and lower extremity.


The Role of The Chaperone: A chaperone will be present while the physical examination is carried out primarily to listen, observe and verify what is discussed and carried out. They must ensure that no conversation is carried out between the practitioner and participant with the exception of asking if there is any pain or tenderness on palpation of certain regions. The chaperone will also be there to safeguard both the practitioner and participant to identify any unusual or unprofessional behaviour. They will also witness the diagnosis and conclusion of the practitioner and validate the documentation by signature. For the success of this project we need chaperones to volunteer for five hours on at least one Sunday in late 2014 to early 2015. We need three chaperones per day and there will be 10 Sundays during the research project that we will be seeing participants in Wrightington. So we need 30 volunteers in total (NB if you want to do more than one day…Great!) Please contact Dr Perrin at drperrin@theperrinclinic.com if you want further details and are interested in volunteering. Thank you.


Interested in becoming a member?
Please visit the "Join Us" page for an application form.

  • Our Meetings
  • Newsletter
  • What We Offer

    What about our meetings?:

    Our meetings are held on the third Thursday of each month from 7.30pm until 9pm-ish, except in April, August and December. The March meeting is our AGM and November is our bring and share buffet social.

    These meetings are held at: Wildlife Trust Centre Building, Bury Rd, Bolton, BL2 6DH
    on the third Thursday of every month at 7:30pm, except in April, August and December.


    The entrance fee is £1 (refreshments, etc) and carers are free. Gluten/dairy free catered for.

    Carers and friends also welcome! Please try to avoid wearing strongly scented toiletries when you attend the meetings, as some members are very sensitive to these products.

    Members are welcome to borrow our electric scooter or manual wheelchair (see "Contact Us" page).


    The Newsletter:

    The monthly newsletter (currently funded by Festival Medical Services  is put together by members of the group and proves a great read! It includes summaries of talks given to the group, future meeting dates, recent press articles,findings from the latest ME/CFS studies, book reviews,helpful hints for ME/CFS sufferers/carers and more. Contact information for other ME/CFS groups (as seen on our "Helpful Contacts" page) is given on the back page. You can see previous articles on the "Newsletter Articles" page.


    What we offer:

    • Regular meetings, 9 times a year on the third Thursday of the month, alternating between speakers and socials. Carers are very welcome too! There are no meetings in April, August or December.

    • Afternoon socials in Prestwich and Breightment

    • Private Facebook group

    • Free yoga sessions, Tuesdays at 3:15pm-4:15pm at the Jubilee Centre, Bolton, kindly funded by Comic Relief and The Co-Operative Membership Fund

    • A monthly newsletter for members, MPs, Health Authorities and other bodies. Currently funded by Festival Medical Services.

    • A well-stocked library of books and CDs.

    • Immediate access to research reports through the national ME/CFS charities' publications.

    • Help and advice on benefits.

    • Links with all other ME/CFS/CFS Groups in the North West through regional meetings and shared newsletter exchange. Growing links with other Groups in the UK.

      And much more! Come and visit us - or see our "Contact Us" page for further information!