The Bury/Bolton ME/CFS Support Group is aimed at supporting ME/CFS sufferers and their carers. There are an estimated 680 sufferers in Bolton and
460 in Bury, according to Action for ME national figures.
If you wish to become a member of the group, please print off this form (PDF file), or this form (Word doc) with your donation and send to the address at the bottom.
Our volunteer named Woman of the Year 2013!: Our carers' representative and group co-founder, Yvonne Leech, was named Woman of the Year 2013 at the Fusion Awards! Yvonne has worked for the recognition of ME for 30 years and made sure the views of carers' are taken into consideration. Congratulations Yvonne, we are very proud of you!
See the Bury Times article here and watch her interview here.
Our main meetings are held at: Longsight Methodist Church Hall, Longsight Lane, Harwood, Bolton, BL2 3HX on the third Thursday of every month at 7:30pm, except April, August and December (Prestwich and Radcliffe socials on all year round).
Thursday 20th February 7:30pm:Julie Stansfield from the charity In Control will be speaking to us, which was originally founded in Wigan. They help people with self-directed support from the Council ("Direct-Payments"). They will be talking about managing personal budgets and how to get support services in place (personal assistants, agencies, etc) and more.This is a good follow-on from Jeff's talk on Community-Care Assessments last month.
Thursday 20th March 7:30pm:Annual General Meeting, followed by raffle and social evening Please come to our A.G.M, we know it's not ery exciting, but it's very important to the running of the group. The last few years, business has been over in less than 20 minutes, leaving ample time for our raffle (lots of great prizes to raise funds) and a good chat afterwards.
Carers and friends are more than welcome at any of our meetings!
The church has a well-sized car park and the ramps at the entrance provide good wheelchair access.
The Harwood meetings are either a social, or have a guest speaker. Speakers talk to us about various topics, e.g. nutrition, equipment to help around the home, reflexology, etc. After the talk, there is usually time for members to chat.
The social evenings have no speaker and are an opportunity for members to chat over tea, coffee and biscuits. Tables will be placed around the room for groups of around 5 or 6. Please help us at the end, by putting away your own chair if you are able. Carers are more than welcome to join us.
The entrance fee is £1 (to pay to rent the church for the evening.) Refreshments are provided, with gluten/dairy free, etc catered for as well.
Please see the "Future Meetings" page for directions.
Prestwich Socials: Informal socials will be held on the second Wednesday of every month at 2pm, at The Orange Tree, Fairfax Road, Prestwich, M25 1AS.
Everyone and their carers are welcome here is a pay & display car park in front of The Orange Tree which is not free to blue badge holders.
There is another car park behind, for those who can walk that far or are on wheels. For those who are on wheels, the pub entrance is wide and level.
Toilets are upstairs, but there is a disabled toilet on the ground floor. For anyone who is concerned they might not recognise us,
we will have a copy of the newsletter on the table.
***Unfortunately, due to poor attendance, our Prestwich socials at the Orange Tree are in danger of being cancelled. We understand people may be unwell, or have other things on that day, but they were set up in response to demand and if numbers do not improve, we may have to stop these and just have our Harwood and Radcliffe meetings. Now the weather is going colder, numbers may drop even further.
Someone has to commit to attending every month to be there, and on more than one occasion, they have been the only one there, and due to their own poor health, this is not fair on them.
Please check on Facebook first to check it is still going ahead, as that's the quickest and easiest way, or call Maria on 07867862341 if you are not on Facebook. We are sorry to have to do it this way, apologies those not online, but it is either this or stop them altogether.
The next Prestwich social is 12th March, 2pm.
Don't forget, we also meet in Harwood and Radcliffe!
Radcliffe Socials: Our Social Group meets informally on the first Wednesday of each month,
at 2pm, at The Sparking Clog, Radcliffe Moor Road, Radcliffe, M26 3WY. It has plenty of parking,
good accessibility, comfortable seating, is relatively quiet and serves snacks and meals. We usually meet on the oval table next to the bar.
PLEASE NOTE. The next one is TBC, as the Clog will be shut for refurb
from mid January to April 22nd, so the next social will hopefully be Wednesday May 7th. Don't forget, the Prestwich socials and Longsight ones are still on-hope to see you there!
Yoga Classes: Are 3:00pm-4:15pm on Tuesdays at the Jubilee Centre, Darley Street (off Eskrick St), Bolton, BL1 3DX. Designed to cater for the average ME sufferer, classes are free and yoga mats are provided.
Please wear loose, comfortable clothing. Contact Olivia on 07746 197511, or email@example.com for more information. Classes are free due to funding provided by Comic Relief
Bury/Bolton ME/CFS Service:
Please see our "M.E Clinic News" page for more details on the service.
New patients need to be referred to the Service by their G.P and have blood work send with the referral.
Existing patients, if they are encountering problems, may self refer back to the service by phoning the Clinic, for up to 12 months after their course of therapy has been completed. After that time they may be re-referred by contacting their G.P. This applies to both Bolton and Bury patients. At present all patients are seen at the Bolton Breightmet Clinic, except for extremely severe cases, where home visits may be arranged.
If you ask your doctor to refer you to the Bury or Bolton ME/CFS Clinics, please ask for a referral to:
Breightmet Health Centre
Breightmet Fold Lane
Telephone: 01204 462 765
Neuro Support 4 Salford Meeting:
This was set up by Greater Manchester Neurological Alliance to identify the people in Bury, patients and their carers, with long term neurological conditions, including ME. It will be used from time to time to seek the views of those people as to how service provision,
medical and social, can be improved. GMNA, Innovation Forum, Frederick Road, Salford M6 6FP.
See their website, email firstname.lastname@example.org or phone 0161 743 3701
Bury Neuro Support:
Bishop Ashton Room, Bury Parish Church Hall
(Some parking available in Church grounds)
With a guest speaker
Tel: 0161 742 7485 Email: email@example.com
Interested in becoming a member? Please visit the "Join Us" page for an application form.
meetings are held on the third Thursday of each month from 7.30pm until
9pm-ish, except in April, August and December. The March meeting is our AGM and November is our bring and share buffet social.
These meetings are held at:
Longsight Methodist Church Hall, Longsight Lane, Harwood, Bolton, BL2 3HX.
The church has a well-sized car park and the ramps at the entrance
provide good wheelchair access. The entrance fee is £1 (to pay to rent
the church for the evening) and refreshments are provided (gluten/dairy free catered for).
Carers and friends also welcome! Please try to avoid wearing strongly scented toiletries when you
attend the meetings, as some members are very sensitive to these products.
Members are welcome to borrow our electric scooter or manual wheelchair (see "Contact Us" page).
The monthly newsletter (currently funded by Tesco Charity Trust Community Awards) is put together by members of the group and proves a great read!
It includes summaries of talks given to the group, future meeting dates, recent press articles,findings from the latest ME/CFS studies,
book reviews,helpful hints for ME/CFS sufferers/carers and more. Contact information for other ME/CFS groups (as seen on our "Helpful Contacts" page) is given on the back page.
You can see previous articles on the "Newsletter Articles" page.